With its 150 exabytes of stored data worldwide per year, healthcare is surely a bright example of the much discussed “data explosion”, and its growth is expected to pick up further speed thanks to decreasing costs in high-throughput medical tests such as genome sequencing, high definition diagnostic imaging, new biomolecular disease markers, not to mention the huge amount of data coming from mobile and wearable devices, all this playing a fundamental role in fostering innovation and improving clinical outcomes.
At the same time, though, acquiring and storing patient information imposes high costs and liabilities on biomedical research centers and private businesses, slowing down the pace of new discoveries, all in a sector where identity theft and privacy breaches are rampant. This is not surprising as the current IT landscape remains a set of local data repositories, mostly managed by hospitals, often lacking the skills, experience and capital to establish appropriate defenses. In parallel, no incentive to share data is available for those producing the data, the patients, who remain disenfranchised of their right to control over who uses their personal information and for what purposes.
In this context, MYHEALTHMYDATA (MHMD) stems from the urgency of securing patient data, reducing "by design" the risk of identity theft and privacy breaches, and introducing a new way to share private information empowering their primary owners, the patients.